tag:blogger.com,1999:blog-306064082024-03-06T23:42:59.927-05:00Just a Bunch of CharactersMark and Abbie's bloghttp://www.blogger.com/profile/05978008557230170189noreply@blogger.comBlogger1830125tag:blogger.com,1999:blog-30606408.post-66056359430448408092015-06-07T23:31:00.005-04:002015-07-03T22:41:44.686-04:00Introducing...Our <a href="http://www.bunchofcharacters.com/">new blog</a> is up and running now. We'll still be making modifications and inserting the ads but from here on out, all posts will be done there.<br />
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Enjoy!<br />
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<a href="http://www.bunchofcharacters.com/">http://www.bunchofcharacters.com</a><br />
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-21213448441152000532015-05-30T13:37:00.001-04:002015-05-30T13:37:15.690-04:00ChangesAs the bills start piling in and we are getting closer to dossier submission and traveling, we are seeing a real need to do more to provide for our family.<br />
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We have prayed and consulted with others and feel one of the ways we can start adding more income is through opening up ads on the blog and becoming an affiliate with several online companies.<br />
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That meant we needed to update and upgrade the blog.<br />
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After doing some research we felt the best way to start this is to swap to online hosting and WordPress. <br />
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And all of that means that Mark will be doing a lot to the blog and making the changes with me sitting beside him in utter shock wondering what in the world he is doing. But also I get veto power on how things look. Got to keep it nice for ya'll!<br />
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Things may be quiet here because I don't want to make more work for him than necessary but stick around. We'll have a few stories to tell when he gets it all situated.<br />
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We are still fundraising though! And our youcaring site and paypal accounts are active. We would so appreciate if you would share our story and our dreams of bringing Y the Brave home!BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-60451618268384528262015-05-29T15:00:00.000-04:002015-05-29T15:00:01.974-04:00The Peanut Farmer<div class="separator" style="clear: both; text-align: center;">
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Emmie's first brace destruction warrented a trip to orthotics two hours away. I knew that a fifteen minute appointment with eight children meant we needed to find something else to do while we were there. After a quick search the day before, we landed on the Jimmy Carter Presidential Library and Museum.<br />
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It was a pleasant and educational surprise in the heart of Atlanta. If you have a couple of hours to kill, I would definitely recommend visiting this museum and library.<br />
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One of the many gifts President Carter received after the Camp David Accords.<br />
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Presidential campaign paraphernalia. I just thought this one was quite funny.</div>
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One of my favorite parts of the museum. A replica of his Oval Office.</div>
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With a Bible on the desk.</div>
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The ceiling of the Oval Office.</div>
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This was at the end of the museum. A pretty amazing portrait of President Carter and all of his accomplishments while in office.<br />
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The highlight for the kids. Airplane seats.</div>
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The closest I'll ever come to a Nobel Peace Prize. Pretty cool.</div>
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Zoe and I enjoyed seeing the replicas of President and Mrs. Carter's wedding clothes.<br />
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Not only was the museum interesting, we also enjoyed the scenery around it.<br />
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We rounded out the trip with the orthotics appointment and Emmie's second brace. We spent less than five minutes to get it. As we were gathering to leave, they came in and told us to head to an inner room because of a tornado warning.<br />
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They found something to pass their time though.<br />
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-54835402491183096792015-05-28T15:00:00.000-04:002015-05-28T15:00:02.902-04:00New Baby Jerni!<div class="separator" style="clear: both; text-align: center;">
My bestie Tracy had her baby in April. I was supposed to doula again.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3sCpKQk2MGZVoNpAMsM6CAbuP5h5jCM5MUmJqaxpiIrjuWz72YWX7_iFNpEe4ZauVFWsUD3ftO2UMF3QRw_yxlb8DhmQmqRFzbtLYvcuKbK_XVlkdZ_Q2tVv6Zhfe6SuoVfHP3g/s1600/IMG_20150412_034448_815.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3sCpKQk2MGZVoNpAMsM6CAbuP5h5jCM5MUmJqaxpiIrjuWz72YWX7_iFNpEe4ZauVFWsUD3ftO2UMF3QRw_yxlb8DhmQmqRFzbtLYvcuKbK_XVlkdZ_Q2tVv6Zhfe6SuoVfHP3g/s320/IMG_20150412_034448_815.jpg" width="180" /></a></div>
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I missed the birth by ten minutes.</div>
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Tracy came over the night before because she was overdue and we were both overdue for some visiting. She was contracting but talking and laughing in between and through them so we didn't time anything and enjoyed our visit and homemade mocha frappucinos that Mark made us.</div>
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She left the house about 10:30. I went to bed and woke up to the phone ringing at 1 and her telling me they were getting ready to go to the hospital. I told her I would nurse Emmie and then be right over or meet them there.</div>
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Twenty minutes later, I put Emmie down and went to get dressed. The phone rang and it was Tracy's husband, Kevin. He told me the baby was coming and he had called the ambulance. I just knew he was telling me a story. His urgency made me realize real fast that he wasn't. I finished getting dressed, kissed Mark and ran out the door. </div>
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But I was too late. Kevin had delivered the baby just before the ambulance arrived.</div>
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I went from being the labor doula to the postpartum doula. I have been so blessed that Kevin and Tracy have allowed me to be a part of each of their labors in some pretty unique and, this time, unforgettable, ways!</div>
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Two weeks after Jerni made her memorable entrance, the crew got to meet her.</div>
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Emmie was thrilled at meeting her first baby.</div>
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As always, Uncle Mark was smitten.</div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-7377488183091916052015-05-27T15:00:00.000-04:002015-05-27T15:00:00.266-04:00On the Mount<div class="separator" style="clear: both; text-align: center;">
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This is how our trip idea went down...<br />
Emmie's having surgery.<br />
We need to have some family time.<br />
Emmie's been to the ocean.<br />
Let's go to the mountains.<br />
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So, in less than three weeks we planned a very quick mountain getaway.<br />
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Our kids are pretty incredible. They are almost always up for an adventure. We found a "mountain retreat" called <a href="http://www.enota.com/">Enota</a> in the North Georgia mountains near Helen. They have cabins, camping sites, and goats (okay, other animals too). <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHZGUaV-WJw__awWgKKf8VRVD6KVltGgTfH6Vs1peXyfmathCdhv61jUPd9iWHnLMJrLA312OCYQ_dgAV9eMpFzg__Nx0OEpvy6NslItFHz3AKsYQMdfI_iKaGCVv75zt2i7KDyQ/s1600/DSC_0883.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHZGUaV-WJw__awWgKKf8VRVD6KVltGgTfH6Vs1peXyfmathCdhv61jUPd9iWHnLMJrLA312OCYQ_dgAV9eMpFzg__Nx0OEpvy6NslItFHz3AKsYQMdfI_iKaGCVv75zt2i7KDyQ/s320/DSC_0883.JPG" width="320" /></a></div>
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The Saturday morning we were there, a foal, had been born to this pony. Such a sweet sight to see this mama and new baby!</div>
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Oh, and hiking trails, a small playground (with some awesome in ground trampolines), and a couple of waterfalls. <br />
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We would not have been able to hike over 7 miles in one day if we didn't have this baby carrier and the backpack that Mark used to carry Emmie!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-8igMUuciXJOQDT4pW0kvmvqI-J6HBnj4Vu4DQp1z4lO_AckB-dEHfZXJD_E9cAsUJLAOtno3ae1aMVDArKA8Me5kTM4rcwyBGyLvM222JrKS87Azei8vOscPXysQeg137CUzGQ/s1600/DSC_0788.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-8igMUuciXJOQDT4pW0kvmvqI-J6HBnj4Vu4DQp1z4lO_AckB-dEHfZXJD_E9cAsUJLAOtno3ae1aMVDArKA8Me5kTM4rcwyBGyLvM222JrKS87Azei8vOscPXysQeg137CUzGQ/s320/DSC_0788.JPG" width="320" /></a></td></tr>
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We were only able to find one waterfall but it was a fun challenging hike after all the rain the night before.</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijxKahu-TUbayR3A7XyBlnOHvNptYBAcDuXpkDZmj2dzje0zTan1i7E8xT2PBc4Otf0tASniaar0meFCEpCJdqqZDTsJbg8Eqj7Awx0_MGQax9O-o6LScLqpzJ73efklCYtTJbZA/s1600/DSC_0812.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijxKahu-TUbayR3A7XyBlnOHvNptYBAcDuXpkDZmj2dzje0zTan1i7E8xT2PBc4Otf0tASniaar0meFCEpCJdqqZDTsJbg8Eqj7Awx0_MGQax9O-o6LScLqpzJ73efklCYtTJbZA/s320/DSC_0812.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Liam found a fairy cave!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhypfY_onsX4It2_IgutAUHzcYx8KRYr2i91lq71Ir6O_vy3kU2_gH7X4xApojEOcLz89flt2Tm0mOPdbqv-q3UXd__gz23Z-kDwqvfjwpoaOELULI5-vXHgLjxa4BGGfG1FS23Ow/s1600/IMG_20150418_143620536.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhypfY_onsX4It2_IgutAUHzcYx8KRYr2i91lq71Ir6O_vy3kU2_gH7X4xApojEOcLz89flt2Tm0mOPdbqv-q3UXd__gz23Z-kDwqvfjwpoaOELULI5-vXHgLjxa4BGGfG1FS23Ow/s320/IMG_20150418_143620536.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">King Bryant of the Mountain</td></tr>
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I love that when we pulled up in to check in, they all got so excited (and had not even seen the playground or trampolines). We climbed out of the van in the pouring rain and they were so excited to see our rustic cabin and just the general area. They didn't have to have attractions or "things to do." Yes, they would have enjoyed that too. But, they love to explore and learn and go on adventures. This weekend trip definitely provided that.<br />
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<tr><td class="tr-caption" style="text-align: center;">Brasstown Bald-the highest point in Georgia and absolutely breathtaking.</td></tr>
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I would suggest going to Brasstown when the rhodendrums are in bloom. They are naturally occurring and <i>everywhere</i>!</div>
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They have a little museum at the top of the bald and a train that Josiah just had to get a picture with.</div>
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A sweet family offered to take our family's picture.</div>
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But the grandmom had to get a picture with Malachi first. He was thrilled. Can't you tell?</div>
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We road a shuttle up to the top off the bald but decided to walk down the .6 of a mile. And found places to climb.<br />
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-60073341562750589672015-05-26T15:00:00.000-04:002015-05-26T15:00:01.768-04:00Park Fun<div class="separator" style="clear: both; text-align: center;">
Park day turned in to Emmie's first time at the splash pad. Mama was totally unprepared but sometimes you have to live in the moment.</div>
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And those smiles say it was totally worth it!</div>
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Josiah was my photographer for most of these. And for most of the others too.<br />
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com2tag:blogger.com,1999:blog-30606408.post-80512316405513869792015-05-25T15:00:00.000-04:002015-05-25T15:00:03.581-04:00Going on an Egg Hunt<div class="separator" style="clear: both; text-align: center;">
This year is a delayed year...but at least we are doing things, right?! Thus, our delayed egg hunt. The kids could have cared less when we did it. As long as we did it.</div>
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Better late than never.</div>
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Emmie, obviously, enjoyed being outside more than looking for eggs.</div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-24035118458120210612015-05-20T15:23:00.001-04:002015-05-20T15:26:51.089-04:00#15Mark beat me to Facebook so I'm just going to share here!<br />
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Fifteen years ago today, I walked down the aisle and pledged always and forever to the man God intended me to spend the rest of my life with. My love. My best friend. My team mate.<br />
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We said no matter what we would stay together. We were young, indeed. And yes, very naive (just drive by our first home together...It's amazing we came out of there alive). I wouldn't trade those young naive years for anything in the world. We learned so much those first few years. <br />
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And each year has brought different challenges. Different ways that the Lord has brought us closer to Him and to each other.<br />
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This year has not been an exception. We have learned to lean on each other in ways I would never imagine we could or have. We are learning more and more how to better communicate in hard situations. And the joyous situations have brought us more joy than I could ever imagine.<br />
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We have definitely learned, this year, how precious each and every sweet laughter and deep <a href="http://georgiacharacters.blogspot.com/2015/05/i-know-fighter_17.html">exhale</a> is.<br />
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I could not imagine walking this special needs journey without Mark.<br />
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I could not imagine walking these past fifteen years without his caring, compassionate and patient (long suffering comes to mind when we think about my crazy emotional self) love. He reminds me so much of the Lord's agape love for us. <br />
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So, Happy Anniversary to my knight! I am so blessed to have you!<br />
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BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-82505475990677731842015-05-19T12:00:00.000-04:002015-05-19T12:00:10.963-04:00Happy Resurrection Day!<div class="separator" style="clear: both; text-align: center;">
This was our first official Easter at our church's new property. While it was super chilly, we all enjoyed the fellowship and the worship of our risen Savior!</div>
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Well, these are the hot cross buns Zoe made. We always have an amazing breakfast that a family from our church provides and these were supposed to have been eaten on Good Friday (just as tradition) but Zoe didn't get to them until Friday evening so we had them Saturday. They were still very good.</div>
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Pastor B sharing God's Word!</div>
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Everyone gathered in the youth room for payer before breakfast. One year, I'll remember to take pictures of the feast. It is so good ya'll. We are so blessed that their ministry is to serve some awesome breakfast foods!<br />
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After worship, an impromptu gathering to sing more praises to God. </div>
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Zoe and friend. Zoe made her skirt. Thankfully, it warmed up quickly.<br />
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I made Ceili Rain and Emmie's dress. We had to go with a quick pattern because mommy let the day creep up on me.</div>
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It was a beautiful day spent with some pretty awesome family and church family.</div>
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BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-859922367727715792015-05-18T23:07:00.000-04:002015-05-18T23:07:00.712-04:00March Randoms<div class="separator" style="clear: both; text-align: center;">
Be prepared for picture overload! These kids are too cute not to share.</div>
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Emmie actually sat with Granddaddy...okay, so he bribed her with animal crackers.</div>
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Papa visits. Games come out.</div>
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We ordered from Lowe's website and the things we ordered came in these really cool boxes that could be converted in to a house. That house was well played in for over a month. Emmie enjoyed peek-a-boo in it.<br />
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Selfies with dad...and a photobomb.</div>
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Raising NF Awareness in the cutest way possible.</div>
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Beautiful weather meant lunch outside.</div>
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Zoe braces, before.</div>
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Zoe braces, after.</div>
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Emmie loves the mirror at Dr. B's office.</div>
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That baby is too cute.</div>
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Malachi showing off his birthday gifts.</div>
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It's a beard. </div>
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Yummy food. Goofy faces.</div>
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Every time I look at this picture it just cracks me up. </div>
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Emmie decided not to eat the chicken nuggets I had given her and just went for the full on sandwich.</div>
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This is our pastor. For the past two years he has been Liam's listener for Awana. That means he listens to Liam recite the verses he has memorized the previous week. When Liam has a rough night and can't focus, Pastor B understands and has been a great encourager. I just love this picture. They work so well together and totally get each other. <br />
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Ge and Granddaddy sent these inflatable hammers. They were a big hit (haha. Pun intended).</div>
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Twinsies!</div>
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Ceili Rain's first pedicure.</div>
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-79631910685076963982015-05-17T16:16:00.000-04:002015-05-17T16:16:28.800-04:00I Know a FighterFirst, there's this (which I sang for days coming up to Emmie's surgery and days after).<br />
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Today is Neurofibromatosis Awareness Day! <br />
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It's almost been a year of living with NF. A year ago today, I was at home cuddling up and getting to know this little one who had shared my body for over nine months. I knew every inch of her by this time last year. I knew her tiny little fingers. I knew her sweet cries of hunger. I knew her grunts and her toes. Just six weeks later, we got to know more about how God had made her special.<br />
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A year ago on June 29th, I'll never forget. Casually getting on to Google and researching the funny names of those little spots I had started to notice on her body. That was a year ago. But it seems like yesterday. <br />
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I've heard several special needs moms who have talked about holding their breath or trying to remember to breathe. Well, this past year has been a lot of breath holding and just trying to figure out how to breath. A lot. <br />
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First MRI, and Mark and I felt like we were forcing ourselves to breath while she was gone but knowing we took in God's sweet air when she was returned. MRI report. "It's really close to her spine." "No compression yet." "We need a better view." Exhale.<br />
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Second MRI. More breath holding. And then the report. "No compression confirmed." "We'll monitor." "Oh the kyphosis could just be positioning." "Watch and wait." Exhale.<br />
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Third MRI. More breath holding. We learned that it doesn't get easier. Especially when your nine month old is burying her face in your chest while they try desperately to get a good vein. And then the report. "Kyphosis is bad." "We'll have to do more." "Surgery." <br />
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That last time took longer for us to exhale. Several times I had to remind myself to just breath. With each exhale a prayer went up to our God. I remember Mark one evening, too overcome with tears to pray and all I could think was "the Holy Spirit intervenes when we can't." <br />
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While we have had a lot of times where we had to remember to breathe, I would say more often than not we have enjoyed the sweet, sweet gift of our baby. Soaking in every bit of what we know all too well is fleeting babyhood. Sibling hugs, first smiles, first laughs, bouncing to music, joy in animals, sleepless nights of baby cuddles, splashing in the bath, soaking in the ocean, the sun, clapping, blowing kisses.<br />
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Today, I asked Emmie if she was ready for mommy's milk. She stopped what she was doing and wanted me to hold her immediately and she reached for our spot. She has done this for the past twelve months without fail. I've rocked and nursed and cuddled our beautiful girl. It's my prayer chair too, I guess. As I rocked and nursed and cuddled and prayed. Tears at times. Smiles and joy at others. Always lifting up our gift to the Lord. We would remember others who were walking a similar journey or one even harder. <br />
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Walking this year has taught us so much. We know now more than ever that each our children has been entrusted to us to raise for God's glory. We've realized that we have no control over our children but we have rested quite peacefully in knowing who is in control. Trusting our Savior with our child, really all of our children, daily. We know that He knows the future for them all. <br />
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I rejoice in my Lord that not one tear, not one laughter has been overlooked by our Lord. That He knows each breath she takes and each one we hold as we await the next report or the next step.<br />
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Want to read more about Emmie's NF journey, start <a href="http://www.georgiacharacters.blogspot.com/p/emmies-nf-journey.html">here</a>.</div>
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Please share, pray, and spread awareness so that more research can be done to help fight NF!</div>
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And visit <a href="http://www.ctf.org/">Children's Tumor Foundation</a> to learn more about NF and how you can help.</div>
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-32754581973014913342015-05-16T08:00:00.000-04:002015-05-16T08:00:03.737-04:00To the Bat Cave!<div class="separator" style="clear: both; text-align: center;">
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What a day Emmie had on Friday! A super hero's work is never done and she proved that.<br />
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First of all, we noticed on Monday, not even two weeks post-surgery, that her new brace (she had been wearing it about a week) was breaking again at the same place the other two broke. I emailed her neurosurgeon to let them know and then also scheduled an appointment with orthotics for Friday. Emmie already had a post-op appointment with the neurosurgeon. Why not add another? <br />
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Meanwhile, I heard back from Dr. C, the neurosurgeon, and they wanted her to have an x-ray on Friday before her appointment. We were told by his staff this was to see if her spine was stable enough to go without the brace. However, that wasn't entirely true. I'll get to that.<br />
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Zoe had an awards night with American Heritage Girls on Thursday night so we opted for an early leave time on Friday. We left our house at 6. In the morning. Dropped the kids off at Ge and Granddaddy's by 9 and headed to Emmie's appointments. <br />
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First up was x-ray. We have yet to figure out how to explain to a baby that she isn't get an owie when the x-rays are at the same place as the MRIs. One day we'll just be able to tell her and she'll believe us.<br />
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After that was done, we headed to Dr. C's office. Dr. C was very happy with how she was doing post-op. He showed us the x-rays from March and then from today and we could see a bit of improvement. Obviously, the spine was not the shape we wanted it to be and I don't believe Dr. C was expecting it to be. He is using the x-ray from today as a baseline. She'll have another done in three to six months (We'll try and coordinate it with her MRI schedule). At that time, we have three options:<br />
1. Spine has shown significant improvement in bend-This would mean Emmie won a trial period without the brace.<br />
2. Spine has shown no improvement or worsening-This would mean that the brace is working and she'll need to continue wearing it.<br />
3. Spinal bend has worsened-We're not sure in detail what this would mean and honestly I don't really want to know but he repeatedly said "invasive action." <br />
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I would much prefer number 1 or even number 2 to number 3. <br />
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He looked at her broken brace and shrugged perplexed. He said he has never had a child break that kind of brace. Ever. One of Emmie's super powers have been revealed.<br />
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We also discussed her eye. Her right eye is still a bit droopy and she doesn't open it too wide. We thought, at first, that it could just be swelling but after two weeks it has not gone down and should have shown some improvement. Before her appointment, I scheduled an appointment for her to see her ophthalmologist to rule out nerve damage. Dr. C agreed with that and expressed willingness to cooperate with her eye doctor should they need information from him. <br />
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With that, we hopefully, said good bye to Dr. C for a good long while. Dr. W will be our go to neuro guy (he is the neurologist if I haven't lost you with all these doctors yet). <br />
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A quick bite to lunch, a power nap, and off to the bat cave to modify her brace.<br />
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I had my qualms. I just knew that the orthotics would shake their heads and either give us another one just like what she had. Instead, she was just like M in James Bond. She looked at, discussed, deduced what the problem could be. After spending awhile with us, she headed to her secret lab to work on the problem.<br />
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We waited. <br />
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<tr><td class="tr-caption" style="text-align: center;">Eye pokes help pass the time.<br /><br /></td></tr>
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And waited.<br />
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And waited some more.<br />
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Genius takes time people.<br />
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Finally M returned (okay her real initial is L but we're going with a super hero/James Bond theme here, bear with me) and brought us the new and improved brace.<br />
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She added a front hard plastic piece and two "buttons" or "screws" on the side. <br />
If she breaks this thing, I may lose it. <div>
<br />M (or L) thought the main issue was that the kyphosis is causing the weight of her head to push forward which is putting more stress on the front of the brace. Basically, it's not that these braces are poorly made but that they are not designed to help kyphosis. But M made it happen, ya'll.<br />
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I wish we had more concrete answers. A more definitive timeline of the future. But Emmie. Well, those who know her personally, this will come as no surprise. Emmie is a special case. Not many one year olds have cervical kyphosis and NF. We're all walking new territory so no one can really tell us what is going to work and isn't and for how long or not. <br />
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Once again, we have no other choice but to trust God and wait for Him to reveal what our next Super Ems adventure will be.</div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-28964893243521278822015-05-15T12:00:00.000-04:002015-05-15T12:00:01.229-04:00Back Home<div class="separator" style="clear: both; text-align: center;">
When Emmie had her appointment with Dr. C at the end of March (this was the<a href="http://www.georgiacharacters.blogspot.com/2015/03/and-actionwith-little-more-waiting.html"> brace appointment</a>), we also got to squeeze in some much needed visiting time with family.</div>
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Daddy & Emmie selfies...always important.</div>
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Liam convinced Papa to play chess.</div>
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Aw, you know, just relaxin' and chillin'.</div>
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We also got to get in a visit with Aunt Yaya and Uncle J. They were at the ballfields running a "league of their own" game day. This league is for all children and they have this amazing field that makes it easy for all kids of all abilities can participate in.<br />
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Uncle J kept Ceili Rain warm. It was quite a cold morning.</div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-16665650670328355892015-05-14T12:00:00.000-04:002015-05-14T12:00:08.821-04:00Antics<div class="separator" style="clear: both; text-align: center;">
While the four oldest were in our annual standardized testing for three days, the rest of us had a few adventures.</div>
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Playground at the mall was a hit. </div>
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And our local Chick-fil-a has a Wednesday morning activity called Biscuits and Buddies. They typically have a special guest come in and do a craft or talk about something fun with the kids. They do this every Wednesday and, of course, with the four oldest around it's harder to get to. But the four youngest, loved it! They got to make fun whoopie pies and noise makers (which Emmie promptly ate the tape off of. She's fine and I think I got most of it out before she swallowed it).<br />
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Wednesday was a big day too because we were doing another Atlanta run that Friday. We went to get the oil changed after testing and we were informed that the tires absolutely needed to be changed. Quick calls and we got in to our usual tire place (they don't sell our size tires at any ol' tire place) and we were set. But we had to wait for the tires to be changed...so we did this:<br />
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And "elfed" our selves. Yes, it was March.<br />
<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-68641584866561112412015-05-14T03:00:00.000-04:002015-05-14T03:00:09.418-04:00Bursting with Color!Lilla Rose sale coming up today! Not only that, we have a fun new line just in time for summer.<br />
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Introducing the new color line:<br />
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Don't forget the beautiful limited edition May 2015 Flexi-of-the-month.<br />
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Check out the website to <a href="http://www.lillarose.biz/characterbunch">order</a>!BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-26950026292665901262015-05-13T14:09:00.000-04:002015-05-13T14:09:00.071-04:00The Bunch and the Oobleck<div class="separator" style="clear: both; text-align: center;">
With all the fun of MRI month in March, we failed to properly recognize the good doctor's birthday on March 2nd. The kids knew and begged most of the month to make our traditional birthday oobleck. By the end of the month, I finally obliged. This time we got a neighbor to come over and join in the fun.</div>
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Just an FYI, I did four boxes of cornstarch total and put one in each tub with some neon food coloring.</div>
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And to make sure it was fully school time, we discussed non-newtonian liquids and watched a video on why cornstarch and water did what it was doing. So, we also watched a video of people walking on cornstarch/water combo...got to keep things balanced around here.BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-18854060381814751122015-05-12T14:04:00.000-04:002015-05-12T14:04:00.283-04:00Put 'em to Work<div class="separator" style="clear: both; text-align: center;">
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People always want to know how we do it around here. I guess I'll share my secret.<br />
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We put them to work early washing dishes. <br />
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Not really. </div>
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Emmie was sitting beside me on the counter one afternoon while I washed a few dishes. She saw the water and was ecstatic. So, I ran some clean water and we let her go to town. It was such a delight seeing her kick and squeal even if it meant our counters (and shirts) were soaking wet.</div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-64929835427846111922015-05-11T22:49:00.000-04:002015-05-11T22:49:00.058-04:00Happy Wedding Day!<div class="separator" style="clear: both; text-align: center;">
One of our pastor's daughters got married in March. It was such a beautiful wedding with a beautiful bride!</div>
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Photo bomb, anyone?</div>
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Ceili Rain just had to see the lovely bride immediately after the ceremony and of course, J willingly obliged. J was Ceili Rain's cubbies' teacher and has always remained dear to her.</div>
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And, my boys were super thrilled about the wedding. Mainly because of the food at the reception. This reception did not disappoint either.</div>
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The beautiful new couple (photobombed by our table mate P).</div>
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Trying to complete the wedding scavenger hunt before we gave up and just enjoyed visiting.</div>
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At this point, the kids had grabbed my phone (with my permission, of course). Apparently the groom, S went in on the charades. I'm pretty sure all the rest of these pictures are from the kids escapades.</div>
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Then Mark pulled out his camera and we got some good pictures as well...<br />
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Father-daughter dance...awwww</div>
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And a daddy with his girls. Mark tries not to blink because he knows he'll be the one in the father/daughter dance all too soon.</div>
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Um, yeah. She's cute and she knows it.</div>
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Thank you to S and J for letting us be a part of your special day! </div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-73324240938474702092015-05-10T21:56:00.000-04:002015-05-10T21:56:19.663-04:00I Know a FighterI've been sharing on our <a href="https://www.facebook.com/bunchofcharacters">Just a Bunch of Characters Facebook</a> page about NF Awareness Month. <br />
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See, I get the fun and silly posts on Facebook about pretending to be a slug and all to raise awareness for Breast Cancer even though Breast Cancer Awareness Month is in October and I'm quite certain it is very well known. I totally agree that we need to spread awareness for it and we have dear friends who have been directly effected by it but I also know that NF is very prevalent and doesn't get as much publicity. So, this is my publicity for it. Minus the slug posts.<br />
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Wow, that was a <a href="https://www.youtube.com/watch?v=gjnLLw5BTmc">noodle</a>. Sorry.<br />
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Back to what I was saying. This month is Neurofibromatosis Awareness Month. The theme Children's Tumor Foundation has chosen is, <a href="http://www.ctf.org/How-You-Can-Help/NF-Awareness-Month.html">"I Know a Fighter."</a> Each day this month, I've posted an NF fact and shared a short bio as well as a picture of some pretty awesome and amazing and beautiful NF fighters. You can go check it out now. Don't worry. This post will be here when you get back.<br />
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May 17th is National Neurofibromatosis Awareness Day. That's seven days away. I would love it if you, my dear friends and family would share our NF part of the blog. Or our Facebook page. Or even Super Ems picture (found below)!<br />
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Please remember to share a link to our <a href="http://georgiacharacters.blogspot.com/">blog</a> or to <a href="http://www.ctf.org/">Children's Tumor Foundation</a> or both when you share!<br />
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-49751429076647854902015-05-08T22:31:00.000-04:002015-05-08T22:31:00.151-04:00Pi Day<div class="separator" style="clear: both; text-align: center;">
While I was enjoying the beach, Mark made sure everyone enjoyed 3.1415 day!</div>
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-77284612065085133362015-05-07T23:42:00.000-04:002015-05-07T23:42:00.062-04:00Beach Bum<div class="separator" style="clear: both; text-align: center;">
I was blessed, blessed, blessed to be able to go to Fripp Island, SC in March on a retreat with other ladies from our church. It came at the right time as we had just found out Emmie was going to need to wear a neck brace and surgery was looming in our nearer future. The time was definitely filled with crying out to God and feeling His peace wash over me.</div>
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God reminded me over and over again who was in control (Him) and I enjoyed soaking up His presence and hearing how He worked in the lives of the other amazing women at our church.</div>
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The view from the deck of the house where we stayed.</div>
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Emmie and I got our own room.</div>
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Wildlife was everywhere!</div>
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One of the most precious women in our church and I decided to take a walk to see if we could see any deer up close and personal. Besides the island just being gorgeous...<br />
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We also got to see the deer we so wanted. Several of them, in fact!</div>
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On the way back to our house, a beautiful bird swooped down in front of us and we followed it to a tree across a pond. Look for the orange beak in the picture above.<br />
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While we were engrossed in taking pictures of the bird, we realized we should watch out for the gators. At about the same time we realized that, we saw this...<br />
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Yep. A baby gator. We snapped a few more pictures and took off before we saw a bigger gator.</div>
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Emmie enjoyed some Bible study time.</div>
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And some cuddle time.</div>
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I caught the sunrise on the last day! It was just beautiful!</div>
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And I also managed to get a few cute pictures of our Ems!</div>
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Emmie decided, on the way back, that she wouldn't mind hanging out with Miss G.<br />
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And we got to watch a "drawbridge" rotate at the same pit stop.</div>
BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-12252093690013438132015-05-06T10:47:00.000-04:002015-05-06T10:47:00.347-04:00Happy 6th Birthday, Ceili Rain!<div class="separator" style="clear: both; text-align: center;">
My middle girl turned six in March. We celebrated in style with a glow party.</div>
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And a horse cake. Let me say that again. She requested a <i>horse</i> cake. My dear daughter has never been on a real horse. Ever. She has a few My Little Ponies but horses have just not been as interesting as dolls. But, this is what she asked for. So, I obliged. We scoured Pinterest, found the <a href="http://www.parenting.com/article/how-to-make-a-horse-cake" target="_blank">perfect tutorial </a>and then she dictated the colors to decorate.<br />
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All decorated up in her glowing cutieness.</div>
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She requested Krispy Kreme for breakfast and when we arrived, they gave the kids donut decorating kits. They were in heaven! (Yes, we have an honorary member of the bunch. James got to spend the night with us the night before and partake in the festivities).<br />
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Emmie thoroughly enjoyed the donuts as well! Her first Krispy Kremes. </div>
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-31030198039511395622015-05-05T05:31:00.000-04:002015-05-05T05:31:00.261-04:00Happy 3rd Birthday, Malachi!<div class="separator" style="clear: both; text-align: center;">
Malachi turned 3 in March. I can not believe he's actually 3! He has grown so much. We enjoyed the day as a family since I was pretty sick and had to do a doctor run.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiejKieVNJvhZo03ZF62DlA9ymC7WY83276zGGAyjEu0u9YdOmOkp5EtC395_zDD5JtWC7nE80_sWnLqQSZRk4Cec2JSxetbVT_WcPfdAJF-aOz6pken986iyeSRJkoNZKvVwgB/s1600/DSC_0144.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiejKieVNJvhZo03ZF62DlA9ymC7WY83276zGGAyjEu0u9YdOmOkp5EtC395_zDD5JtWC7nE80_sWnLqQSZRk4Cec2JSxetbVT_WcPfdAJF-aOz6pken986iyeSRJkoNZKvVwgB/s1600/DSC_0144.JPG" height="214" width="320" /></a></div>
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The kitchen helpers to make birthday cupcakes. </div>
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Birthday cupcakes. Malachi changed his mind about every hour trying to decide what kind of cupcakes he wanted. I got these cute monster cupcake toppers after Halloween last year and when I showed them to him, he finally made up his mind! It was afterwards that he reminded me that he hasn't had an actual real cake in two years. Here's hoping for next year.<br />
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<br />BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-75466828388087789492015-05-04T05:37:00.000-04:002015-05-04T05:37:00.515-04:00PJ Day<div class="separator" style="clear: both; text-align: center;">
Our annual Bruster's tradition! This year we were not at our home Bruster's and had to make due with going to the one in Ge and Granddaddy's town. It was in a bowling alley. Across from the bar. Yeah. </div>
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Well, regardless of the location, which did throw us off for a small bit, we all got our free ice cream and we loved it!</div>
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Emmie got a free cone. We didn't think her nine month tummy really needed full on dairy just yet.BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0tag:blogger.com,1999:blog-30606408.post-71663427409823019452015-05-03T07:30:00.000-04:002015-05-03T07:30:00.764-04:00NF Fighter Update #2What next?<div>
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Well, that's a good question.</div>
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First of all, Emmie will have a post-op follow up appointment. At that appointment, we'll discuss when her next x-ray and other monitoring tests are. We already know that she'll have her MRI in June as originally planned. This MRI will really show whether the tumor that was in the bend of the spine is gone. She will probably also have an x-ray then too.</div>
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Until June, at least, she'll be in another brace. As I mentioned in the <a href="http://www.georgiacharacters.blogspot.com/2015/05/super-heroes-unite.html" target="_blank">previous post</a>, this is the third brace she has had. The first two were cervical collars. She broke the first one at four weeks and the second broke at a week. Dr. C wanted her in a more rigid collar so she is now wearing what is called the minerva collar (yes, because of the <a href="http://www.ancient.eu/Minerva/" target="_blank">Greek mythology</a>). We're all hopeful this collar will actually last.<div class="separator" style="clear: both; text-align: center;">
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When we showed the neurosurgeons what her collar looked like they all said, "Huh, never seen that before." Yep, that's our girl.</div>
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Emmie is a very unique case because typically plexiforms will push the soft organs/tissue first. For some reason, that hasn't happened and it's her spine that is being pushed around. Not only that, this is the youngest child that several of the specialists have seen dealing with a plexiform and kyphosis.</div>
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Dr. C mentioned that he hopes these collars will buy us two years before surgery will need to be done to correct the kyphosis. As I've mentioned earlier, she is so young that her bones are still so soft and any type of rod placement at this age would just not be successful. The older she is the more successful surgery will be.</div>
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And, there is always the possibility that the tumors continue to grow and cause issues. That is something we just don't know and can't predict.</div>
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It looks like we'll just be living and planning from MRI to MRI right now.</div>
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We are praying for no tumor growth and an improved kyphosis in June. From there...who knows?!</div>
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Saturday was the first day with the new collar. They had to go up in size on the neck piece because they don't make the minerva part to fit the triple 0 size she had. This collar is going to take some getting used to on everyone's part. We had to change her wardrobe to just onesies or larger clothes that fit over it (layers won't happen much in the summer). I made her a couple of dresses to go over the brace for church and wear around. I also am making up some bloomers to wear the onesies so she can still be a unique fashionista in her own toddler way. I'm so very glad that I can sew and that I have a plethora of scrap fabric to do these quick sew projects. Now we're just trying to figure out how to make the brace more comfortable for us when we carry her! We'll figure it out. We'll adjust. And we'll carry on. By God's strength, that's what we do around here.</div>
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BunchofCharactershttp://www.blogger.com/profile/13069042446029182845noreply@blogger.com0